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Late Post: 2/18/2015

Monday, April 6, 2015
Well today's visit was not that exciting it was depressing...
The tumor markers have gone up the last three visits. Which means there will be a new treatment plan.
Current: Zometa ( IV Infusion), Arimidex (Daily Pills), and Leuprolide (2 shots)- once every three months, no serious side effects other than hot flashes and weight gain.
Options from doctor for change:
A: Zometa, Leuprolide, and Faslodex 500MG (2 shots). Because of this new shot I will need it once a month. As of today I have it get them every two weeks until March. side effects same as current.
B: Zometa, Arimidex, Leuprolide, and another daily pill don't remember name. 1 every three months. Side effects he says that will be annoying for me mouth sores, rashes, fatigue
C: Zometa, Leuprolide, and a new FDA approved drug from two weeks ago, has one patient on for a study. So he doesn't have enough information to give me on this one.
I even asked about removing my ovaries if it will benefit anything. But he said removing ovaries will just be a convenience to eliminate one of the treatments. But you will still need to come in for the others. So really there is no winning here.
I chose option A. Which means I have to stay in Texas.
I asked about my survival chances? Of course no answer... Wonk wonk...
Kind of good news the cancer I have is estrogen receptor positive metastatic breast cancer. It can be treated with hormone therapy for a long time. Hopefully this new one will keep the markers from increasing and under control.
Job hunting has been meh, most of the ones I apply for are online, and most ask if you have a disability or did and Cancer is listed as a disability. You can only answer yes, no, or do not want to answer. Of course they say they don't discriminate... Really like who are you fooling.. Ugh... Would love to find a job that can be flexible and accommodating with my health. I want to work in California, but flying back once a month would be too costly vs flying once every three months which would be doable for me until I find the right employer and job.
The struggle is real.
I cried today out of anger and sadness driving home while listening to crazy in love remix on repeat ok I love that song! tongue emoticon
Love you and thanks for all the support and motivation!

1 comments:

Mike at: April 8, 2015 at 10:33 AM said...

Best wishes to you for a full recovery. Where are you being treated? Did you ever make it to the Burzynski clinic?

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