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Follow Up with Doctor

Tuesday, March 8, 2011
Went into to talk about my first treatment and what side effects I was experiencing. Which is nothing major just bone pains, hot flashes, and staying in bed for a few days.

Vitals good
Blood work is fine ( they haven't called me back about it so that's good!)
My tumor is the same size 8cm wide, no change in that yet... I heard the tissue should start getting softer?
My second treatment will end my menstrual cycle =(

Since I just started the treatment the results of my progress won't show until after 3 months.

I have some forms here to sign up for:
1. Consent to be part of a Research Study- A prospective observational multicenter cohort study to assess the incidence of Osteonecrosis of the Jaw (ONJ) in cancer patients with bone metastases, starting on Zoledronic Acid Treatment (which is the Zometa injection).
What is it ONJ you say?! It can cause the following and there has been increase reports in these symptoms:
Swelling of soft tissue around the jaw
Infection
Loosening of teeth
Drainage
Exposed jaw bone

OH HECK NO I DON'T NEED THIS! I am hoping to be the patient who can tolerate this treatment. If I do this they will do diagnostics and monitor me while I am on this treatment once every 6 months for 3 years.

2. Consent to be part of a Research Repository-Same study as above, but collecting blood samples and dental imaging during the study. Same duration once every 6 months for 3 years.

I might as well do it to help myself and others for research etc...

In the mean time I am waiting for my second treatment on March 17.

See my favorite little man Ares who's visiting me with his mom later this month after my treatment.

Battle the insurance/medical bills/doctors in San Diego (HEADACHE! I was born in the US, paid my damn taxes, and I don't understand how it is difficult for me to get assistant being a citizen. People with green cards, visas, and immigrants get help right away I don't get it ugh!)

Figure out what I can do for work, I don't want to work for anyone right now though, and need stress free work to do I can enjoy.Which means I have to figure out on a project, business to work on.

Go back to school this summer.

Continue to take my non toxic vitamin therapy, juices, and eating organic foods. I am not hardcore yet I still smuggle in some bbq  & yummy cupcakes once in a while in my diet! Haha..  It's not easy switching over to the healthy side.

Going to the gym, zumba, just dance, hiking etc... if my body permits me.

Spending my last day with my BFF/Sister Grace Yan before she goes to Australia for 3 months. 

Skyping with Colleen. LOL the only person who entertains me while I am stuck in my cave. LOVE YOU GIRL! For making time for me xo

Lynda Chang just amazing woman with a big heart! For spreading the word and helping me with the boobie fund. LOVE YOU!

3 comments:

Mittens at: March 8, 2011 at 10:29 AM said...

Aww love you too lady!! Skype ya later!

don at: March 9, 2011 at 4:55 PM said...

glad to hear that things are going well. and moving forward.

slloyd at: March 21, 2011 at 3:54 PM said...

Glad to hear treatment is going well. You have such a positive attitude, I know you'll kick cancer's ass! If you get a chance, text me your new address....then we can be pen pals!!

XOXO

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