Bone Scan Results & Treatment

Wednesday, February 9, 2011
Sorry hehe I just got home from the pharmacy and now going to share what Dr. E told me today...

Bad News: 
Confirmed diagnoses with Stage IV, from the bone scan I had yesterday.
Too late for me to save my eggs right now because treatment has to be done right away. I am more concerned about this more than anything else. Just thinking about it makes my heart burn and teary eyed right now.

Good News:
Life span is high! 
I don't have to do Chemotherapy or Radiation! Say what?! I won't lose any hair, good cells, or get infections.
No mandatory surgeries...thank GOD seriously I would be traumatized if I had anything removed from my body.
I can continue to do my crazy workout and go to the gym.

1. Tamoxifen (Oral tablet)- Main purpose blocks cancer cells. Treats advanced breast cancer in men and women, and early cancer. Also may prevent breast cancer in women who are high at risk because of age, family history, or other factors.
Possible Side Effects- Allergic reactions, chest pain, shortness of breath, coughing up blood, dark urine, pale stools, fever, chills, cough sore throat, body aches, heavy or abnormal vaginal bleeding, pelvic pain or pressure, nausea, loss of appetite, stomach pain, new breast lumps, numbness or weakness in arms or legs, side of your body, pain in lower calf, sudden severe headaches, vision, speech, walking, swelling hands, ankles or feet, unusual bleeding, bruising, weakness, yellowing of skin or the white of  your eyes.

2. Lupron (Metal tube inserted under skin upper or inner arm) Main purpose puts ovaries to sleep. Shuts down the ovaries and stop them from producing estrogen so there is less estrogen to fuel the growth of hormone-receptor-positive breast cancer. That's good news too I guess... it will not be permanent and I don't have to have a hysterectomy.
Possible Side Effects- Increased bone pain, weakness, burning, tingling of legs or feet, decrease in how much or how often you urinate, or hot flashes.

3. Zometa (Injection) Main purpose strengthens bones, reduces and delays bone complications.
Possible Side Effects- Bone pain, nerve and muscle, stomach, or flu like symptoms.

So... I was at the pharmacy to get Tamoxifen... I will have to take this every day for I don't know how long...

The other two treatments I have to go into the doctors once a month to have it given to me.

I just don't like the idea of having a small cut and tube in my skin.

I will have menopause symptoms...HOT FLASHES... I hope not. I will def need to go do some serious gym time or jump into the pool across the street from the house. 

Other than that I am happy with treatment and hoping it will work... I mean it should! I can and will continue to take my vitamin therapy and eating organic foods. Maybe spoil myself here and there with some fat/sugar.
Bone scan omg takes so much time!


Anonymous at: February 9, 2011 at 2:42 PM said...

I'm sorry you can't save your eggs but there are always alternative options when you are ready. As for the Good news... "Life Span is high" - it's amazing!! You hang tough and your friends and family are here for you cheering you on to a fast recovery!

<3 Ms.Hollz

Anonymous at: February 9, 2011 at 2:52 PM said...

Like Holly said, I'm sorry too but there are other alternatives and most importantly Life Span is High and no chemo/radiation!! I think about you everyday and you continue to be in my prayers. xoxo Bern

Anonymous at: February 9, 2011 at 2:56 PM said...

Tamoxifen works!!!! Aside from the loss of your eggs this is incredible news Julie.


Unknown at: February 9, 2011 at 3:43 PM said...

I can always adopt and spoil your kids ;) woot woot

Stephen at: February 9, 2011 at 4:39 PM said...

Great News... =) I will translate this to the fambam...

Unknown at: February 9, 2011 at 6:57 PM said...

Seriously great news lady! I guess you are stuck with your own hair ;-)

Unknown at: February 9, 2011 at 7:39 PM said...

Haha... umm yeah doesn't hurt to prepare ;) My hair will grow back.

Took the tamoxifen an hour 30 minutes ago a little tingling on my upper left shoulder/clavicle , but it went away. So, far so good I am not experiencing anything strange.

jdisco at: February 9, 2011 at 8:21 PM said...

Tokidoki - Re: Tamoxifen, yellowing of skin isn't much of a side effect; you are yellow anyway. :P

I'm stoked to read the good news! We miss ya!

frank at: February 9, 2011 at 10:18 PM said...

That is really good news. Not needing chemo and radiation is a relief. Having a positive mental attitude is good medicine and you have that already :) Sounds like its gym time.;)

Stephapalooza at: February 10, 2011 at 7:06 AM said...


I'm so sorry to hear the confirmed diagnosis, but so happy to hear the long life span news and no chemotherapy! Wouldn't want to waste that sexy shag hairdo! (haha.)

About your eggs: Luckily you have a sister who has almost the same DNA as you...when the time comes, perhaps that's an option. :-) My sis has a genetic bone disease that I don't have, and if she finds out she's a carrier I will donate eggs to her. Anything is possible these days, so don't let it get you down.

Love ya, keep up the positivity!!! You're so strong and amazing. :)


Unknown at: February 10, 2011 at 4:13 PM said...

Hey Julie:
I'm reaalllly happy to hear about the "high life span" side of this and there not being a need now for chemo, that's great. Sorry to hear about the eggs, but there are always tradeoffs, right? I know you're doing the right thing and taking care of yourself and miss not being there for you. xo -Rusty

Anonymous at: February 10, 2011 at 7:45 PM said...

Hey you hang in there. We AK families are here for you too. You can come and spoil my babies. You take care.


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