Content

The Results

Wednesday, January 5, 2011
Hi all... I know some of you may think how the heck is she writing a blog right now and not crying in the dark?!! Haha just kidding. =P I cried a little, but what good does that do? You tell me? I don' know... I broke down the results as simple as possible for understanding.


PET Scan:

  • Dominant hypermetabolic (increased abnormal activity) mass in central left breast
  • Hypermetabolic lymphadenopathy( disease in the lymph nodes) left axilla
  • Upper right cervical lymph nodes
  • Left aorticopulmonary window lymph node
  • Right(subcarinal) and left(posterior) Hilum (Lungs)
  • Nodular soft tissue density is seen in the anterior mediastinum mildly metabolic and also suspicious for metastases disease
  • Numerous hypermetabolic sclerotic skeletal metastases seen throughout the spine, sternum, sacrum, pelvis, and clavicles. 
  • Most intense lesion seen in medial left clavicle 
  • No hypermetabolic activity seen in lungs(YAY FOR EXERCISE), liver, spleen, or adrenal glands
  • Enlargement of uterus containing multiple fibroids
  • Hypermetabolic subdermal lesion in left posterior thigh, inflammatory lesion or soft tissue metastasis
  • Focal increased activity is seen within the region of the distal stomach and duodenum likely physiologic
MRI Scan:

  •  This is worrisome for nodal metastases (that is what was on the notes)
  • No abnormal enhancing right breast mass or right axillary lymphadenopathy seen. ( good news =P )
What does this mean well it has already spread to my bones. Doctor says there is no known cure for bone cancer?? So, good thing, nothing is spread to my brain (thank GOD!) Estrogen is feeding my tumor, either I have my ovaries removed or take estrogen suppressor medication. As of now there is no scheduled treatment yet. The oncologist doctor is going to a conference on Tuesday January 11 and will discuss my case along with a few other rare bizarre strange retarded diagnosis with the rest of the doctors in his field, breast cancer experts, radiologist etc., I will meet with him the following day to hear what the procedure(s) is the best treatment for me. I just told him I want to live till I am 100 years old man! Seriously, my purpose in life is not complete I can't go yet. Till then I have decisions and plans to make. I may opt for clinical trials just cause I will be monitored all the time I think? As well as the traditional chemo session. As much as I want to be with family in Alaska and Texas. I will be here in San Diego because the facility is here for treatment and health cost will be ridiculous if I moved anywhere else.

How I am feeling? Am I OK? I am still mobile and active right now so that's good to know. Now I know why have muscular pain in random areas (lower back, upper shoulder, under arm). I'm sad yes especially about not having babies....but I can get through this even if they say I will be weak, my soul and heart is strong so bring it on Cancer Bad!

In the mean time I would like to do things I haven't done while I am still active. =)
See I am smiling!

19 comments:

Anonymous at: January 5, 2011 at 8:08 PM said...

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Cat

Rianne at: January 5, 2011 at 8:10 PM said...

Hi, Julie. I'm sorry to hear about what you're going through. I just want to let you know that you're in my prayers. Stay strong and keep on living your life!

jdisco at: January 5, 2011 at 8:35 PM said...

Jaymy got you. See you soon! :D

Anonymous at: January 5, 2011 at 9:21 PM said...

I love you!!!

-tiffani

Stephapalooza at: January 5, 2011 at 10:01 PM said...

Jules, you are seriously SO strong and they doctors have no idea who they are dealing with. We are all here for you to help with whatever you need, and to cheer you up when you need it. :)

Marisol at: January 5, 2011 at 10:44 PM said...

When you walk through the storm
Hold your head up high
And don't be afraid of the dark
At the end of the storm
There's a golden sky
And the sweet silver song of the lark

Walk on, through the wind
Walk on, through the rain
Though your dreams be tossed and blown
Walk on, walk on, with hope in your heart
And you'll never walk alone
You'll never walk alone
^^^^^^
Love you, Julie :::big hugs:::

Anonymous at: January 5, 2011 at 11:01 PM said...

This shouldnt be happening to you Julie




nick t

Dale at: January 6, 2011 at 12:23 AM said...

As someone who has personally had to restrain you from a fight once, cancer has no idea who they are messing with... much less who you got as backup. You'll continue to be in my prayers!!!

Melinda D. at: January 6, 2011 at 8:11 AM said...

Julie, we're here for you. Please let me and Nico know if there's anything you need.

jojo at: January 6, 2011 at 10:29 AM said...

I love you Julie! I'm a phone call away if you ever need anything!

You've been in my prayers day and night with hopes you beat this evil cancer. You're one of the strongest and bravest women I know, I've always admired that about you! <3

Sean C. at: January 6, 2011 at 2:57 PM said...

hi julez... miss u, love u and thinking of u

Sean

angel at: January 6, 2011 at 6:53 PM said...

My heart hurts for you but I know you! You are a fighter.....we need to see 10 more SuperBowls!

Jennifer at: January 6, 2011 at 8:32 PM said...

We love u frm Ak, prayers frm us.... 

Stephani at: January 7, 2011 at 6:46 AM said...

I am so proud of the strong person that you are. You are so positive! Plus you are helping all of us by sharing your story. Keep being proactive girl and you will beat this!

Anonymous at: January 7, 2011 at 5:12 PM said...

I dont know you, but I know your uncle, V, as we work together. I'm sorry to hear about your struggle. You are a beautiful and brave young woman. I want you to know that you are and will be in my prayers.

Linn

Anonymous at: January 8, 2011 at 12:02 AM said...

You're a fighter Julie, and probably the most upbeat/positive person I've ever known. I just don't know what else to say... except I love you.

Anonymous at: January 8, 2011 at 12:11 AM said...

I am a friend of will's. Be strong ( I think you are already) know there is a lot of love and support across the world. I have the UK covered! Chris

Jill at: January 8, 2011 at 3:13 PM said...

Hi Julie,

Thanks for your comment on my blog, "Dancing With Cancer." I am so sad to hear about your mets diagnosis. You might want to explore the Young Survival Coalition and their upcoming conference for young women with breast cancer (http://www.youngsurvival.org). You don't have to go through this alone!

Jill

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